Four years ago tomorrow, my mom passed in her home, taking her very last breath surrounded by her husband, daughter, son-in-law and granddaughters. I will never forget it, and I would never wish it upon another human being.
It was a tough year. I had just given birth to my second baby, naive that life was grand and I had never been happier. One month later, my mom was diagnosed with Stage 4 Glioblastoma Multiforme (GBM) – a deadly brain tumor with a nearly non-existent survival rate.
The next 12 months would be riddled with tumor resections, radiation, chemotherapy, (multiple doctors, hospitals and nursing homes) and ultimately the infection that would end her life. It was also riddled with never-ending love, overwhelming emotion, and undeniable heartache.
I remember googling GBM as we sat in the waiting room, my mom alone in her hospital room, minutes after the diagnosis. We were all absorbing what we had just heard. I had never heard of GBM – there is no known cause, there is not currently a cure.
Thanks to information provided by the National Brain Tumor Society, I was better able to understand what was happening. Thanks also to their dedication to research, they proudly donate $0.83 cents of every dollar they receive. I knew that day I would one day partner with them. I couldn’t save my mom, but I could bring awareness, contribute to research, maybe I could help to save YOUR mom (or YOUR daughter or YOUR nana). In the last 3 years, our small town had housed the National Brain Tumor Society Nature Walk held annually at Weldon Springs State Park (where my mom spent countless hours, years, of her life giving to our community). We have raised over $36,609. We are currently working on year four of this event.
In the meantime, I have met many families affected by GBM, all of whom have helped me through this journey – hopefully I’ve been able to help some of them as well.
Today is the first ever National GBM Awareness Day. This is HUGE. July 17, 2019 – just one day short of four years since I lost my momma, is recognized to bring awareness solely to GBM. I am elated.
Please consider sharing information about GBM today – share our event, share our fundraising page, donate, post a picture of GBM facts, share this post. Whatever you can do today to help bring awareness – I know I’d appreciate it, but I know the world will benefit from it. Thank you, from our family (who is seriously missing a significant piece of our hearts) and for all of the families who deserve a cure ❤️